Costs & Coping

Self-management of lupus patients takes a village

Empowering lupus patients to take charge of their health isn’t just about handing them a pamphlet. The complexity and high mortality of this disease call for a more interactive solution. Physicians need to engage patients as partners, educate about disease, and provide access to health-literate resources.
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Making a successful transition away from pediatric lupus care: Clinical team members offer insights

Youth resilience and family dynamics play key roles in transitioning lupus patients from pediatric to adult care.
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Digital tech for patients with lupus: Not ready for prime time?

Apps and interactive websites are available, but patients want privacy and links to doctors.
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Peers Helping Peers to Manage Their Lupus

Early study results have shown anecdotal evidence that African American women with lupus respond to peer mentoring to self-manage their disease.

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The impact of lupus on the next generation

Children born to mothers with systemic lupus erythematosus are not at greater risk of a rheumatic autoimmune disease but may be at increased risk of autoimmune diseases not rheumatic in origin, data from a population-based registry study shows.
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Lupus awareness low in 16-nation survey

To have lupus is to know lupus, but an international survey suggests that to not have lupus is to not know it.

“Low awareness of lupus results in public misconceptions about the disease [and] the lack of understanding contributes to the stigmatization of people with lupus, often leaving them feeling isolated from family and friends,” the World Lupus Federation (WLF) said in a statement accompanying the survey results.

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